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Symposium

Social Research, Policy, and Practice

Fostering Improved Outcomes Among Care Partners of Persons Living With Alzheimer's Disease and Related Dementias

Friday, November 15, 2024
4:30 PM – 6:00 PM PST
Location: Room 603
CE: 1.5

The decline in cognitive and functional abilities due to Alzheimer’s Disease and Related Dementias (ADRD) increases the reliance of persons living with dementia (PLWD) on care partners. These care partners, who can be spouses, children, friends, or others, often experience high levels of stress and burden, leading to poor physical and psychological health outcomes. This symposium will feature five speakers who studied ADRD care partner outcomes using various methods across diverse populations. Dr. Darina Petrovsky will discuss findings from the 2017 National Study of Caregiving and National Health and Aging Trends Study, focusing on the relationship between care partner sleep quality, burden, and perceived caregiving benefits. Dr. Shandra Burton will explore cultural factors and resilience among Black/African American care partners using narrative inquiry. Dr. Samantha Shune will present a multiple regression analysis examining the link between PLWD's dysphagia (swallowing difficulty) and care partner burden. Dr. Elyse Couch will describe a mixed-methods study investigating the impact of care partners receiving PLWD's positron emission tomography (PET) scan results on their burden. Lastly, Dr. Bybee will review results from an interpretive descriptive analysis of dementia dyads' open-ended survey responses regarding advance care planning. Dr. Petrovsky will then synthesize the symposium findings and moderate audience questions.

Alzheimer's Disease and Related Dementias Interest Group Sponsored Symposium

Learning Objectives:

  • Articulate the importance of research specifically addressing outcomes of care partners to persons living with Alzheimer's Disease and Related Dementias (ADRD)
  • Recognize how care partner outcomes are associated with factors related to the care of persons living with dementia.
  • Apply knowledge regarding the risk of care partner burden and benefits of including care partners to one’s own program of research.

Presentations:

  • 4:30 PM – 6:00 PM PST
    Advance Care Planning (ACP) Concordance Associated With Relationship Quality and Grief Among Dementia Dyads

    Individual Symposium Abstract First Author: Sara G. Bybee, PhD, LCSW (she/her/hers) – University of Utah College of Nursing

  • 4:30 PM – 6:00 PM PST
    Objective and Subjective Indicators of Caregiver Burden Following an Amyloid-β PET Scan: A Mixed-Methods Study

    Individual Symposium Abstract First Author: Elyse Couch, PhD – Brown University

  • 4:30 PM – 6:00 PM PST
    Examining Predictors of Poor Sleep Among Caregivers of Persons Living With Dementia

    Individual Symposium Abstract First Author: Darina Petrovsky, PhD, RN, MN (she/her/hers) – Duke University

  • 4:30 PM – 6:00 PM PST
    Cultural and Positive Adaptive Factors Influencing Diverse Partner Caregivers Through a Resilience Framework

    Individual Symposium Abstract First Author: Shandra D. Burton, PhD, RN, PHNA-BC (she/her/hers) – Marian University Indianapolis School of Nursing

  • 4:30 PM – 6:00 PM PST
    Dysphagia Management Contributes to Burden in Caregivers of Persons With Dementia

    Individual Symposium Abstract First Author: Samantha Shune, PhD, CCC-SLP (she/her/hers) – University of Oregon