A Conversation on Translation and Adaptation of Evidence-Based Programs for Caregivers

Chair(s)

• AE

  Amy Eisenstein, PhD, FGSA (she/her/hers)

  Senior Program Officer and Director of Research and Evaluation
  NA
  RRF Foundation for Aging
  Chicago, Illinois, United States

  Slides

Discussant(s)

• KH

  Kenneth Hepburn, PhD, FGSA (he/him/his)

  Professor, Tenured
  School of Nursing
  Emory University
  Atlanta, Georgia, United States

Individual Symposium Abstract First Author(s)

• 

  Fayron Epps, PhD, RN, FGSA, FAAN (she/her/hers)

  Professor
  Nursing
  The University of Texas Health San Antonio
  San Antonio, Texas, United States

  Handouts
• 

  Roxana Delgado, PhD, MS

  Professor/ Military Research Scholar
  School of Nursing
  The University of Texas Health Science Center San Antonio
  San Antonio, Texas, United States

  Slides
• 

  Kelly McConnell, PhD

  Assoicate Attending Psychologist
  Psychiatry & Behavioral Sciences
  Memorial Sloan Kettering Cancer Center
  New York City, New York, United States
• KO

  Kelly O'Sullivan, MS (she/her/hers)

  Master's Student
  Human Development
  Washington State University
  Pullman, Washington, United States

There are currently a plethora of Evidence-Based programs designed to support caregivers. However, while caregivers represent a highly diverse population, cultural and linguistic characteristics and preferences are not always considered in the development of these programs. This symposium will bring together four research projects exploring lessons learned in their work around supporting culturally and ethnically diverse caregivers. Presenters will discuss specifics around when and why adaptations or new programs are needed and how to apply rigorous methods.

The first paper will present lessons learned from the development and evaluation of a culturally tailored anxiety intervention for Latinx caregivers of older adults with cancer. The second paper will explore work on the translation and testing of an online program for Latinx family members who provide care for older people with dementia. Next we will hear about lessons learned from culturally adapting and tailoring an existing psychoeducation program for Black caregivers of persons with dementia. Finally, we will wrap up with a session describing a scoping review to identify common core components of family-centered interventions that could serve as a foundation for interventions that can be designed to support caregivers of all cultural and ethnic backgrounds. The session will be pulled together with a discussion on how we can take these lessons learned to continue to build programs in support of a culturally and ethnically rich population of caregivers, and will highlight gaps and further opportunities for research in the field.

Presentations:

• 12:00 PM – 1:30 PM PST

  The Process of Culturally Adapting and Tailoring an Existing Psychoeducation Program for Black Dementia Caregivers
  

  Individual Symposium Abstract First Author: Fayron R. Epps, PhD, RN, FGSA, FAAN (she/her/hers) – The University of Texas Health San Antonio
• 12:00 PM – 1:30 PM PST

  Translation and Cultural Adaptation of a Dementia Evidence-Based Program for Family Caregivers
  

  Individual Symposium Abstract First Author: Roxana E. Delgado, PhD, MS – The University of Texas Health Science Center San Antonio
• 12:00 PM – 1:30 PM PST

  Engaging Stakeholders to Address Anxiety in Latino/a Caregivers of Older Adults With Cancer
  

  Individual Symposium Abstract First Author: Kelly McConnell, PhD – Memorial Sloan Kettering Cancer Center
• 12:00 PM – 1:30 PM PST

  Beyond the Dyad: A Scoping Review of Core Components of Family-Centered Caregiving Interventions
  

  Individual Symposium Abstract First Author: Kelly O'Sullivan, MS (she/her/hers) – Washington State University